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"Positive Deviance is based on the observation that in every community there are certain individuals or groups (the positive deviants), whose uncommon but successful behaviors or strategies enable them to find better solutions to a problem than their peers." http://www.positivedeviance.org
To Whom It May Concern:
Parkinson's disease is often said to be an incurable, progressive, and degenerative disease, but the rate of progression varies tremendously between individuals. In this study, we are going to monitor your choices, actions, therapies, and attitudes, and attempt to identify the factors associated with the slowest rate of progression.
Among individuals who are doing especially well, what are they doing?
We invite you to participate regardless of your health status. Ther more people participate, the more we learn.
In order to participate, you will need to:
- Confirm that you have read and undertand the consent form, your rights as a study participant, and agree to participate (one time only).
- Fill out a questionairres every 6 months for 5 years. (1- 1.5 hours each)
- Sign a release of records from your neurologist, or agree to send us copies of all your labs, imaging, and neurology chart notes over the next 5 years.
Please direct any questions you may have about this survey to Dr. Mischley at 425-602-3306. Any questions about your rights as a research subject should be directed to Lizbeth A. Adams at the Bastyr University Office of Research Integrity. Your time and efforts are appreciated.
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